Geraldine’s Story

2 Apr geraldine

On a warm September day, Friday 13, 1996, I finished work early. I worked at the Neil Simon Theater, a job I loved during the production of the King and I. I had brushed shoulders with actors like Lou Diamond Phillips, experiencing the very essence of theater. I was also very involved in my community neighborhood watch GCOPS or the Glendale Civilian Observation Patrol. It was my connection with my community that led me to request to leave early from work to shop for a block party the following day. I stopped at the mall in my community to pick up a few things and proceeded to go home ending my journey on a bus that would drop me a few blocks from my home.  I couldn’t have imagined that my life would change forever at 9:30pm that evening.  Although, I cannot recall the accident I am able to compile the details from newspaper clippings and recollections of my family members. I was struck by a hit and run driver going 75 to 80 mph. I had been left with broken bones, ribs and a head injury resulting in a coma.  A fellow neighbor and GCOP witnessed the accident contacted the police and emergency response services before tracking down the assailants leading to their arrest.  I would be taken to Elmhurst hospital. The Physician performing the surgery would later dub me a miracle having survived such a tragic accident. I was officially inducted into the TBI community.

While hospitalized at Elmhurst Hospital and later Mount Sinai, My mother would visit weekly demanding that I was given the best care. My uncle who was also my God Father would often call reminding me of how proud he was of my progress. It was this tragedy that allowed my mother and I to spend her last moments together. It would be years of rehabilitation. I would receive Physical Therapy, Occupational Therapy and Cognitive Remediation to name a few. I would use a wheel chair and walker to ambulate and eventually graduate to a cane. It was a lot of hard work, but I was persistent believing I could and would get better. Rehabilitation consisted of time spent at the Park Terrace Care Center, Jamaica Hospital Outpatient Services, United Cerebral Palsy and eventually Fairview Adult Day Care Center. The love and support of my family, rehabilitative staff and friends I met along my journey have given me determination to succeed. I had a roommate at The Park Terrace Care Center whose father would routinely visit and on one occasion gave me a dollar for luck. 16 years later, I still have this lucky dollar. The Park Terrace Family threw me a going home party, complete with card full of encouragement and warm words. It would be at Fairview where I would learn about the brain, its parts and various functions. I have learned so much about life with a Traumatic Brain Injury and I now view my experience as a blessing, an opportunity to experience my life anew. I understand I will always have moments when I reminisce and miss the life prior to my TBI, but these feelings are temporary. I will focus on living in the moment and being thankful for all the love and support I have in my life.

My hope is that others with brain injury will keep fighting, not give up hope, and believe that they can succeed. I would like to encourage the caregivers of people with TBI to be patient, and learn as much as they can about our experience. Please remember that we need and appreciate your support. It’s vital to our recovery. I would like to thank BIANYS for allowing me to share my story and hope I can be an inspiration to at least one other person with TBI.

All My Best,

Geraldine K.

geraldineGeraldine’s Words of Advice.
Remember rehabilitation is very important to recovery. Although it will be difficult, don’t give up and take one step at time. Remember not to tell yourself that you can’t because you can. You can do many things just in different ways. You have to be a willing participant in your recovery. Let love, understanding and patience especially with yourself be your tool. Don’t be embarrassed about having a Traumatic Brain Injury. Brain injured is not brain damaged. Everyone’s experience is unique.
Thank you for listening to my story and Good luck to everyone!

Written by Geraldine K.  for  The Brain Injury Assn of New York State   http://www.bianys.org/

Joe Stands Up to Brain Injury

1 Feb Joe Powers Image 4 crop 2

Joe Powers, a comedian and writer living in New York City, took a nasty fall off a building that left him in a coma.  Like many survivors of TBI, he had to re-learn all of the basic functions of life.  It took four years for Joe to learn how to stand, walk, talk, breath, swallow, eat, and use the bathroom, but Joe is back on on the stage now and performing once again.  Below is a snippet of Joe’s latest stand-up routine. Way to go, Joe.  Thanks for encouraging all of us with your determination and humor.  We hope to see more of you on youtube!

Joe Powers Image 6https://www.youtube.com/watch?v=JvawICG5Q7c

Al’s Story

8 Jan SSPX0017

New technology and my bionic hand  has opened my life in ways I always dreamed would be possible.

“How did your brain injury change you?” was the question of the month.  Between sips of coffee and occasional tears, my fellow support group members each took a stab at the question, reflecting on their past and present lives.  After years of gathering together in a basement meeting room at our local hospital, we knew each other’s story pretty well. It’s not a coincidence that most of us had been injured as teens. Cliff diving, speeding through the woods on ATV’s without helmets on, drunk driving – we fit the statistic quite well – the one that says risky behavior makes teens more prone to brain injury.  As each person spoke, the rest of the group quietly listened, privately remembering the fun-loving, carefree kids that once filled their shoes while imagining how their lives would have been different had they not been so careless all those years ago.  I sat silently, too, staring down at the table top, wondering how such a loaded question applied to me. When I glanced up, all eyes were on me.  They were waiting for an answer, but I struggled to come up with anything to say.  Did my brain injury change me?  I wasn’t so sure.

See, I don’t really think my brain injury changed me all that much.  Unlike the others in the room, I just didn’t remember myself as an easy-going, carefree kind of kid. True enough, my younger days seem ridiculously light in comparison to now.  In that respect of the word, I agree with them. And, yes.  I was just as fun-loving as anyone else all those years ago.  But I was more the kind of kid who was determined to have my way, regardless of whether it was good for me or not.  Wanting to do the impossible. Was that such a bad trait?  Not necessarily. I will argue that what most teens want, what they strive for, is to take charge of their own lives.  They plow ahead with courage and determination, looking beyond the obvious obstacles.  Daredevils, all of them – and I wasn’t any different.

During the summer of 1986, I was a tenth grader who wanted nothing more than to be on my own. And what better way for a daredevil kind of guy like me to feel independent than to own my own freedom machine – a motorcycle.  That was my dream. I had owned mini-bikes before, but this was different.  With a full-sized motorcycle, I could take off by myself and drive wherever the air sent me.  I was determined to buy one, regardless of the fact that I didn’t have any money.  I got a job flipping burgers at the nearby Burger King and saved every penny I could until I found a motorcycle that I could afford.  Then I spent hours talking the owner’s parents into letting me buy it for the measly amount I had saved.  Fifty dollars.  I wasn’t going to take no for an answer, and they knew it.  So that afternoon in July, I walked home with my first real motorcycle, feeling as though my day had finally arrived.

Yes, I knew I still had to get my driver’s license and a helmet before I could drive the bike on the road.  And I knew I had to learn how to handle the bike before I could pass the road test.  I should have been cautious, taking it all slowly, one step at a time, but that wasn’t my nature then and it isn’t my nature now.  I couldn’t wait to ride it, so I put on the only helmet I had – my bicycle helmet – and took my new motorcycle down to the abandoned railroad tracks, speeding off as fast as I could go.  I didn’t see the other kid, a 16 year old just like me, roaring down the tracks, coming at me on his dirt bike from the opposite direction.  I’m not sure if he saw me, either.  All I know is that we crashed into each other in a head on collision that ironically left both of us with disabling left arm injuries.

The chain of nerve cells that runs from the brain through the spinal cord out to the muscle is called the motor pathway. Normal muscle function requires intact connections all along this pathway. Damage at any point reduces the brain’s ability to control the muscle’s movements.  After spending three weeks in a partial coma, I woke to hear that this is what happened to me.  Besides dealing with the usual brain injury problems, I had to learn how to function with one hand while carrying my useless, atrophied arm in a sling, enduring constant pain and pins and needles.  Just zipping my coat was a major ordeal and driving was out of the question. Lifting a box or sweeping a floor became near impossibilities. This was my life for the next 26 years.

Al's old arm 2

my old nonfunctioning arm and hand before surgery

But, here is why I disagree that my brain injury changed me.  The fierce courage and determination – the traits that defined my young personality – haven’t gone away with age.  I take those traits with me when I use one arm to get dressed in the morning or when I open a can.  I use those traits to do jobs that most people do two-handed .  And I relied on those traits when I told doctors I wanted my useless arm removed and a prosthetic arm put in its place, making the same request, over and over, year, after year, after year. Even though I was told it couldn’t be done, I persisted anyway, knowing that someday, I would get my way.

It was the Anderson Cooper Show that finally changed some doctor’s minds.  My girlfriend and I were watching Anderson’s program when he introduced, as a guest on his show, the first civilian to receive a bionic hand.  It was a device called the Michelangelo Hand, created by Advanced Arm Dynamics.  The hand uses electrical signals from the body to operate.  When I saw how it worked with such precision, I knew my dream could finally come true.

You can see Matt’s story here:

http://www.armdynamics.com/pages/in-the-newsmatt-razink

my new hand

my new Michelangelo ha

I know I just finished telling you about my stubborn determination, but you should meet my fiancée, Debbie.  She just doesn’t take no for an answer!  After the show was over, she immediately got on the phone to the Advanced Dynamics Group and asked how she could get a bionic hand for me.  The next thing I knew, she had made an appointment for me at The University of Pennsylvania program where I was reviewed.  Between July and November, 2012, I received the surgeries I needed to get rid of my chronic pain, to remove my dead arm above the elbow, and to receive my new hand.

Now, only a few months later, a light weight piece of metal replaces my useless forearm and attaches to the remaining stump by a plastic sleeve. The device straps around my back and tightens across my chest.  It works through nerve sensors so tensing my triceps muscle opens the hand and tensing it again closes it.  I have only had my new hand for a few weeks, but already, for the first time in 26 years, I can lift a box, swing a bat and zip up my jacket.

Al's arm

my new hand and prosthetic arm

So, to answer the original question, “How has my brain injury changed me?”  It didn’t.  Yes, it certainly changed the path of my life, but I am still the persistent, determined daredevil kid I used to be.  No brain injury can take that away.

For more information, go to   http://www.armdynamics.com/pages/what-you-need-to-know

written by Al P. and Paula Schmidt for  The Brain Injury Assn of New York State   http://www.bianys.org/

SSPX0017

Advice for Survivors:   I would like to give my thanks to the Advanced Arm Technology Program which created this technology for the Wounded Warrior Program.  And I would also like to thank all of the veterans for risking their lives and limbs for all of us.  I am indebted to you.  Thank you, Anderson Cooper, for airing this program.  Because of all of you, my life has changed dramatically.

For everyone else, if any of you are going to ride a motorcycle, use the right helmet and don’t take off until you have learned, with supervision, how to ride it. With everything else in your life, stay positive, stay persistent, and keep pushing.

debbieAdvice for Caregivers:  Don’t give up.  Keep researching because technology is advancing every day that can help with many different problems.  There is no such thing as can’t do it.  Anyone can do this.  Keep a positive attitude, no matter how bad the situation seems.   Take it a day at a time – with a positive attitude, all things are possible.  Patience and persistence pay off.

Jon’s Story

28 Nov OLYMPUS DIGITAL CAMERA

Congratulations to Jon, whose story has won him First Place, 2012 Quill Award, Best Human Interest Story for 2011, NYSARC.  Jon’s Story was the first story written for our blog and debuted just one year ago.

blog.nysarc.org/2012/10/22/2012-media-and-quill-award-winners/

I’m Jon and This is My Story

Most people in Upstate New York remember March 15, 1993 as the day the Blizzard of the Century paralyzed our region.  That day had a profound impact on me, too, but not for the reasons you would think.

My workplace had closed down early that day.   The storm was coming on fast, dumping six inches of wet snow on the ground, trees and power lines in less than an hour.  It was 5:00 and I was glad to be heading home early.   At 18 years old I didn’t care too much about any impending storm.  March meant spring was finally here, and the only thing I was thinking about was graduating from high school in a few short months. My grades had put me at the top of my class and I had just been accepted into engineering college, a hard-earned dream come true.  I was on the swim team, played in the orchestra, and had a girlfriend.  Eighteen – the best age ever.  I didn’t have a worry in the world.

As I headed out of work that day, I glanced up toward the gray sky that hung low over the town.  I couldn’t see much in front of me, just the thick snowflakes that stung my face and mounded quickly around my feet.  The wind was relentless so I flipped my coat collar up high then stuffed my Sony Walkman earphones into my ears and headed down the road.  In hindsight, I guess this is the place where I went wrong.  But it all seemed innocent enough at the time.  I turned the music up full blast (the only way to listen to music) and strongly considered taking the forbidden shortcut home along the back railroad tracks.  It would be OK, I reasoned.  After all, the news report said a state of emergency had been declared, meaning the trains couldn’t possibly be running, right? I decided to go for it.  I sneaked up over the back bank and walked out onto the blustery trail, the metal train tracks  guiding my way home already invisible.  It was getting worse outside, but no big deal.  My house was only a few minutes away.

The music blaring from my Walkman was so loud that I didn’t hear the warning shouts of the whistle.  The snow had turned to sleet, blinding my sight and muffling the sounds around me. As a matter of fact, it wasn’t until my feet rattled beneath me that I turned around  – and was startled to see the dire situation I was in.   Looming over my head was the face of a huge, black metal train, staring back at me through the dusk. With no time to think, I did all I could do.  I jumped high in the air and dove for my life.

That’s it.  That’s the last thing I remember of the Blizzard of the Century.  One mistaken decision, one rumble from the ground, one flash of black in the storm, and my life was changed.  Forever.

I learned about the rest of my ordeal from my parents.  They learned about it from the people who spent hours searching in the dark for my body.  The conductor said I bounced 3 times off the front of the train before I was tossed into the air like a rag doll.  The policeman said I was thrown 50 feet from the railroad track. The emergency response team said they searched much of the night before finally finding me, unconscious, buried in 3 feet of snow.

The doctor told my parents that I would be dead before morning.

Everyone has their religious beliefs and mine have been granted to me by my family.  My dad was a minister who believed strongly in the power of prayer.  I’m not sure why The Big Man Upstairs decided I should stay here on this planet.  Maybe it was because of the people from all of the different countries who prayed for me that night.  I don’t know.  All I know for sure is that my dad started a prayer chain that began at my hospital bed and traveled around the world.  It even reached as far away as China.  I made it through that night, and the next night, and the night after that.  The doctor just shook his head, telling my parents not to get their hopes up.  I wouldn’t live, and, if I did, I would be nothing more than a vegetable.  But, live I did.   And 7 months later, I emerged from my deep coma wondering what in hell hit me.

“A train.” my mother said, “You were hit by a train.”

“Who gets hit by a train?”  I asked her.  I truly thought my family and friends were playing a mean, sick joke on me.  Unfortunately, the doctor echoed her words and that’s when the denial set in.  It couldn’t be as bad as they were saying.  Never walk again? Never swim or use my arm or hands?  Memory and speech problems?  They were all liars.   My life would go back to normal, and it would happen soon.  But, soon didn’t happen.  After months in rehab, I reluctantly realized they were telling me the truth.  For the next 13 months, I would fight to keep depression and anger from suffocating me.

I went through a long stretch of time when I was mad at everyone – my parents, the doctors, and even God.  What gave them the right to decide  for me that I should stay on this planet and work so hard – just to regain a small semblance of my old life?  I wasn’t so sure that I wanted to stay!  And I wasn’t so sure I wanted to be the guy whose identity was stolen away by a beaten up body that hardly functioned anymore.  I had to learn how to talk, how to eat, and even how to breathe – a shock to a kid who was on the swim team.  My lungs had multiple punctures in them, to the point where I swear I could hear the “wind” whistle when I took a deep breath.  I couldn’t even sit up without support.  I called myself the blob because it took months for me to regain the use of my trunk muscles.  Nothing worked right anymore.  But worst of all, my life didn’t work anymore either.   Facing that fact was overwhelming. This was definitely the hardest part.

Truth be known, though, I am, down deep, an eternal optimist.  Through it all, I hung onto a good-sized chunk of denial, in spite of the reality of my situation.  I am grateful for this piece of denial, because without it, I would have fallen into a severe depression, one that I may not have had the gumption to climb out of.  Actually, now that I mention it, I guess I’m still living in denial.  But that’s OK.  Brain injury or no brain injury, I know that I am “smarter than the average bear”.  I am very bright and my deficits aren’t going to ruin me.  Yeah, so I have a few problems.  Who doesn’t, right?  Now, 18 years and an entire lifetime later, I still spend my days in a wheelchair.  I have poor vision, spasticity in my left arm, and little use of my hands. Just going to the bathroom can be a major ordeal. The doctors still tell me that I will never get better.  That is depressing, yes, but I view it this way – never say never!   I’ve made a lot of progress through the years and I intend to keep it up for many years to come.

You might ask what my driving force is, what keeps me going every day in spite of the fact that I am physically a “train wreck”.  It’s simple.  I stay strong for all of the people who have helped me.  On rare occasions, when I catch myself wishing that the train did end my life, I think of my friends and family and how it would be for them.  If I start feeling sorry for myself, I try to remember that a lot of people look up to me.  I’m a survivor, not because I want to be, but because I have to be for the benefit of those who see me as an inspiration.  I am a reluctant role model.

Many people ask me how to deal with hard issues in their lives, be they physical, emotional, or spiritual.  I know they look at me and think, if a train couldn’t put him down, nothing can.   Then, I think – hell, yeah!  If a train couldn’t put me down, nothing can!  I’m a survivor who has used my inner  strength to reinvent my life.  I go to work every day and have my own apartment.  I have many friends and I love to go to restaurants and flirt with the waitresses.  And, best of all, I have a sense of humor that makes all those long faced non-survivors realize that life can be a joy – if you let it be.  I have a lot of insight to share.  If my opinion was pay worthy, I’d be rich.

Awhile back, I went to visit the doctor who, all those years ago, told my mother I would be nothing more than a vegetable.  I went into his office and said, “So, what kind of vegetable do you think I am?”  It gave me great pleasure to see the surprised look on his face.  It gave him great pleasure to see how far I had come.  This experience, though small in comparison, let me know that I can create my own miracles.  I’m still working on staying happy for myself, to be my own motivation.  But in spite of it all, I am a happy guy.  And, I am rich!  Wouldn’t you agree?  I am rich in friends, stamina, and in life.

My life rocks.

Jon’s Words of Wisdom

“After your accident, you need to be understanding and patient with yourself.  It takes time to get better.  The hardest part is to learn how to give yourself a break.  Give yourself credit for what you have accomplished, even if that accomplishment seems small.  And teach others to be patient with you.   It is a 50/50 deal.  You have to work together.  You have to tell people to slow down and give you the time you need.  It is hard when you could once do everything for yourself and suddenly you are limited.  It is very frustrating when you find you can’t even wash your own face.  It all takes time and practice.  Just don’t give up.  And remember – when you are feeling sorry for yourself and your lot in life, there is always someone in worse shape than you. Everyone has their problems that seem just as insurmountable to them as our problems seem to us.  No one gets off easy.”

Good luck to you all, and thanks for listening.

Peace Off,

Jon

 

Words from Jon’s Mom, Ginny and his Dad, Joe

“Lots of times parents are told that their child would reach a plateau and never get any better.  This just isn’t true.  Sometimes, the progress is a bit like watching grass grow, but progress does happen.

About 6 years ago, Jon moved into his own apartment.  I was terrified and many people told me he couldn’t succeed alone.  But succeed he did, and it was the best thing we ever did for him.  Yes, he needs help with cooking, shopping, scheduling and laundry.  But he is self-sufficient and learns new skills on a regular basis.

Jon is still making progress that surprises all of us.   The accident left Jon without the ability to do many of his favorite things.  One of those things was swimming.  But, just last week, after 18 years in a wheelchair, Jon stood for 5 minutes on the side of a swimming pool.  Just standing is a miracle in itself, but Jon raised his good arm and dove right into the water.  It was awesome.”

Love,

Ginny

Jon’s Story was written by Jon B. and Paula Schmidt for http://www.bianys.org/

Thanks, Brainline, for posting my story:  http://www.brainline.org/content/2012/02/jons-story.html

Laura’s Story

26 Oct Dr. Selub October 2012

August 20, 1998. Nearly fourteen, long years ago. Yet, one ill-fated moment in time was to change my life forever.

It happened. I have replayed the moment, over and over again, in my heart and mind. Why did it happen? I will never know. But, the past is over and done with. One random moment, where life as we know it went awry. That is why it is called “an accident.”

On the afternoon of the accident, at 4:50 PM, just before I left my busy, multi-specialty dental practice in Woodbury, Long Island, I called my husband, Chuck, who waited for me at our Dix Hills home, sending him kisses, and telling him I’d see him soon. But I never made it home.

In the 15-minute drive east on the LIE, a reckless, speeding motorist rear-ended and crushed my brand new Toyota Camry. The accident fractured my skull and I fell into a coma. Chuck sat home and waited anxiously. Finally, after four hours, Suffolk County detectives arrived to share the news of my accident.

Freed from the wreck by the “Jaws of Life” I was heliported to Nassau University Medical Center, undergoing emergency surgery by Dr. Stephen Schneider.

My coma lasted 35 days. When I regained consciousness, I was unable to walk or balance, and saw double through severely crossed eyes. Having stopped breathing during the coma, a tracheotomy had been performed. Until the hole in my throat was closed I was unable to speak.

It took time for the reality of my situation to sink in. I deluded myself, thinking I’d return to work the next day, that merely a single day–not an entire month–had passed. My life, as a mother, a wife, a dentist, had been wonderful, but demanding. Now, I applied my attention to the even more demanding task that lay ahead: rehabilitation.

So much is history now. As a result of processing the myriad details of everyday life, my memories of the recovery time are no longer clear. But I will never forget the emotional support and encouragement I received from friends, family, but, most of all, from Chuck.

I spent nearly 2 years in treatment at Transitions of Long Island, where I underwent an intensive, combined program consisting of speech therapy, occupational therapy, physical therapy, cognitive therapy and psychotherapy. My time at Transitions played an enormous role in my recovery. It will always be considered a huge part of my life.

The past years, post-accident, have been gratifying, although very different from my life pre-accident. I have watched my children grow and shared a home with my family. One very satisfying experience was my resumption of driving an automobile. The State of New York requires that all coma victims undergo a repeat NY State DMV road test, which I passed with a perfect score in 2005.

In 2000, I joined the faculty of the Stony Brook School of Dental Medicine and taught there for 10 years. I enjoyed teaching, but, two years ago, I returned to my greatest professional love:  private practice.

Written by Dr. Laura S. for http://www.bianys.org/

 

Andy’s Story

13 Jun Andy and Patty

You can also read Andy’s Story on Brainline:  http://www.brainline.org/content/2012/06/andys-story.html

It was well before dawn on a typically hot and steamy night in June, a night often found during a stifling New York City summer, when my life changed in ways I could never have imagined.  Most people sleep through the ungodly hours between midnight and morning, safely locked in their homes and oblivious to the underworld that exists outside their windows.  For me, though, this was the time of night when I did my best work. Yes, I knew my job was dangerous, which is why I endured weeks of intense training, learning all I could about how to keep myself alive.  But all the training in the world didn’t prepare me for the dire situation that awaited me on that fateful night in 2001.  Eleven years later, I am still baffled as to how a single event can spin a person’s life so profoundly out of control.  It is hard to understand, and even harder to explain, but my hope is that by sharing my story with you, I can pull together a few more fragmented pieces of what has become the puzzle of my current day existence.

People often ask me, “Have you seen the HBO show The Wire, Andy?”  Then they try to discuss the characters, the details of last week’s show, the difference between real narcotics undercover work and the fiction they see on TV.   Television characters engulfed in a world of senseless, greedy violence, undercovers trying to break up the scummy underbelly of a city gone awry…. “Is that what your job was really like?” friends ask.  They expect me to know.  I stare at them with a blank look on my face while I try to go about the impossible task of recalling what last week’s episode was about.  I’m sure I saw it and I probably liked it – I am guessing anyway.  But, no matter how hard I wrack my brain, I just can’t remember.  See, I can only retain memories for about 5 days before they drift away, lost in a fog of jumbled, irretrievable events that I somehow participated in – if only I could remember how.  I mumble something unintelligible back at them then change the subject fast. I want to talk about now, about today, before this day’s memories disappear along with the rest of them – into the vast sea of thoughts and impressions that I can no longer discern.

Yes, I have a pretty severe case of memory loss.  For reasons no one can explain, my brain’s electrical system is no longer able to imprint permanent memories.   It sounds like the work of science fiction – the fact that all of our memories, our joys, our sorrows, are nothing more than a fleeting bit of electrical impulses.  But that’s the way it is. Fortunately for me, my memories of the past are still intact, so I am able to tell you my story without relying too much on input from others. So, here’s what happened:

There were about 35,000 police officers in the NYPD when I started working as a patrolman. I remember patrolling the streets of Bronx, breaking up domestic incidents and chasing down petty thieves.  I just assumed it would be my life for a very long time, but, when my friend, Pete, asked me, “Andy, do you want to try something new?”  I responded, “Hell, yeah!”  Back then, I loved a new adventure.  A career with the elite undercover NYPD narcotics force would suit me just fine.

Undercover was totally different than anything I’d ever done before. I spent months training before I could even begin, learning how to be less like me and more like the people I usually arrested. I was taught how to walk and talk in ways that didn’t give away the fact that I was a cop. Ironically, I was even taught how to forget my own name so I didn’t startle and fall out of character if someone recognized me on the street. It wasn’t easy – forgetting who I was and becoming completely immersed in a different identity, a character I would portray for weeks, if not months at a time.   I had to learn how to live two different lives, how to be unrecognizable, even to myself.  Little did I know that this new skill would save my sanity all these years later.  For then, though, I was just having a really good time.

Much to my amazement, I was a pretty good performer.  I remember working Harlem and Washington Heights, not an easy place for a 6’1” white guy to be undercover – but I pulled it off. Through the years, I created many different personalities.  I was a homeless guy, a mechanic and a junkie to name a few.  When I worked lower Manhattan, my job was to create the persona of a drug addict who hung out at after hour clubs.  I grew my hair long, dyed it black, and became a greasy and disheveled street level guy named Mike.  I wore black everything – pants, jacket, t-shirt and shoes.  I changed my voice and my gate and even my attitude.

I must have been pretty convincing, because one time, when I was jogging near my house, trying to lose weight so I could look more like a junkie, a man from the neighborhood drove by in a car with his wife.  I saw him look at me with disgust as I ran past him, my waist long hair dripping down my back, my beard unshaven and unshaped. He turned to his wife and just shook his head.  A few months later, I was in a meeting at work, when in walked that same guy from the neighborhood.  We stared at each other for a minute then broke out laughing.  He was a fellow undercover.  Neither of us knew what the other one did for a living.  He said when he saw me jogging that day all he could think was, “what the hell has happened to my neighborhood”.  We became great friends and co-workers from that day forward.

Being an undercover was a lot like being an actor, but with higher stakes. I knew I had to put on a great performance each and every day.  Bad acting might get someone bad reviews.  But a bad undercover performance would definitely get me killed.  Yeah, it was dangerous, but I loved every minute of my job.  It fit me well.

The downside of the job was my home life.  I would disappear, sometimes in the middle of the night, not able to tell my family where I was going or when I would return.  I’d be gone for days at a time, leaving my wife with the task of managing the entire household alone.   She was raising our two small children single-handedly.   She didn’t like my job – the erratic schedule, the difficulty arranging childcare, the fearful and sleepless nights. But she knew I loved it, so she hung in there for my sake, doing what she needed to do, doing her part to get along.

That night in June wasn’t dramatically different from any other. I was doing the clubs with my partner, a female master of disguise who could effortlessly transform her naturally sweet self into a loud, crass, tough girl junkie with the change of a hair-do and a skirt.  We were sitting in our little red Honda, parked in lower Manhattan, the last in a line-up of parked cars strung along the dark side of Broadway, waiting for the right time to go into a certain club.  Like most nights, our job was to open a case for drugs and weapons.  We both had our guns ready in case something went terribly wrong.  This was typical of the job.  Everyone carried a gun, be it cop, drug dealer, or club owner – there were always guns involved when buying drugs.  Most nights, I tried not to think about it because, if I did, it would be too much to handle.  On this night, though, I was thinking more about the perfect hamburger I had just eaten from my favorite late night diner.  I fiddled with the car’s radio, but it didn’t work.  To kill time, my partner and I reclined our front seats toward the back and started telling knock knock jokes.

And that’s it.  A hamburger, a broken car radio, a knock knock joke. Those are the last things I remember before my life was turned upside down.

I have been told that a car flew around the corner at a high speed and hit us, the driver claiming he lost his breaks.  When the ambulance came, the EMT’s strapped me to a board then brought me to the hospital, afraid that I broke my back. My wife was called by my great friend, co-worker, and neighbor – the one I told you about earlier.  He proved to be a saving grace for my wife and myself in the early days after my accident, and without him and his family, I’m not sure we could have held up through all that was to follow.

X-rays showed I didn’t break my back, and I walked out of the hospital that day, a bit dazed and asking the same questions over and over. By Sunday, my wife said I was acting dopy.  By Monday it hit me hard – I couldn’t remember anything at all.  By the end of the week, my wife said I had developed a stutter so bad that I couldn’t communicate with anyone. I cried a lot, had vestibular issues and balance problems.  The force’s doctor said I had post-concussion syndrome and recommended I see a neurologist.  I went to therapies 2 days a week and hoped it would all blow over soon.

Recovery was slow, but it was coming along, until weeks later, I was driving home from the store with my wife when my head felt strange and large, like it was too big for itself.  I pulled into the driveway, got out, and fell, face first, onto the ground.  I tried to stand up, but I couldn’t stop from shaking all over.  Soon, I couldn’t walk, and for the next six months to follow, I was confined to a wheelchair.  I spent a month in a rehab hospital, but no one could figure out what was wrong with me.  “Just one of those weird neurological anomalies”, the doctors would say.  One sent me to a psychiatrist who decided I had conversion disorder, all because he couldn’t find an answer that fit into his narrow little diagnostic framework. I tried hypnotherapy, physical therapy, psychotherapy – you name it, I tried it.  I did learn to walk again, but shortly after I got out of my wheelchair my left hand closed up.  It hasn’t been the same since. What caused all this?  No one knows to this day.  I have no choice but to add this experience to the list of bizarre TBI things that have happened to me (and other people, I’m sure) without reason.  Post-concussion syndrome… a strange thing that does the unthinkable, making you feel like you’ve lost your mind, your sanity, and, worst of all, the life that you once took for granted.

As you can tell by my story, I never did regain my memory. I will be disabled for the rest of my life, but learning to adapt to the changes, learning to take life a day at a time, has saved me from the grips of depression.  For all the therapies, doctors, and treatments that I went through, there is one piece of advice that stands out in my mind.  My wife once said to me, “When you go to the top of the mountain and meet the guru who is going to tell you the secret to life, he is probably going to say, ‘Andy, don’t let things bother you so much”.  There is a lot of truth in that statement, and now, all these years later, I try to live by those words to the highest degree that I can.

My wife says I am quirky now, since the injury.  For example, clutter makes me edgy and I feel the constant need to clean. I keep post-it notes everywhere so I can remember what to do next.  I keep a journal that I read when I feel like I need a reminder that last week really did happen, a way to keep up with the memories I can no longer hold onto.

I think it was quite an adjustment for my wife to have me home constantly after being away for days at a stretch, but we’ve worked out a system and we’re happy.  My family is my driving force now, and I am proud to say that, for once, I am able to be part of it.  My kids, their sports games, their homework, the grocery shopping – I can finally give my wife some relief from all the daily chores that she carried alone for so many years.  I am extremely grateful for the family time that most people are cheated out of.  My kids are my rock, my reason to get up in the morning.  I have a great set of friends, too – all my buddies from high school.  When the chips were down, they were there for me.  We get together every Thursday night and we go fishing on the weekends when we can.  They are my extended family now.

I wish I could say that everyone stuck it out with us through all the crazy hard times.  Unfortunately and to our surprise, many people weren’t there when we needed the help the most.  I’m not bitter for myself, but my wife really needed them and they didn’t come through. On the other hand, though, there were the others who deserve to be praised, even knighted. My wife’s sister went so far as to buy the house next door so she could be there for us, which brings me to another great lesson that I’ve learned because of my ordeal. Hang on to those people who come through for you, and hang on to them tight.  They are your true friends, the ones whose love is unconditional, and the ones who give you a place to plant your heart.  For the others?  Well, it is a shocking thing, realizing that people you counted on may not hold you in as high of regard as you once held them.  It hurts all over at first.  Just realize they are who they are.  Some people just can’t handle the changes they see.  They are easily frightened, controlled by their own fears and issues, caught up in their own existence.  This is not where you need to be after a brain injury!  You need the strength of those who keep a positive attitude, who love you regardless of the fact that you may not be the exact person they remember.  You can’t take it personally.  It is their baggage, not yours.  Just let it go.

Sadly, I lost my close friend, the neighbor and colleague that I told you about earlier on in my story.  He was electrocuted while helping another neighbor pump out his basement after a flood.  I’m not surprised that he died while helping a neighbor. That is exactly who he was.  He was truly someone whose life had purpose, a man who many others, not just I, felt they could hang onto.  I will miss my great friend.  So, what is my lesson here?  To be more like him whenever I can.  It is as simple as that. I keep his prayer card hanging in my armoire so I can see it when I get dressed in the morning.  It is a something I have to do so I won’t forget that he has died and embarrass myself by going to his house for a visit.  That is how bad my memory can be.  I would never want to hurt his wife in such a “thoughtless” way, so I endure the painful, daily ritual of remembering that he is gone.

So there you have it.  That’s my story.  You were probably expecting that it would be more dramatic, maybe ending in a machine gun clad shoot out where we nabbed the bad guy after a tense car chase complete with wild stunts and death defying feats.  It is ironic, given my job, that a simple hit from an out-of-control car inflicted such havoc on my life.  But, that is exactly what happened.   Do I regret it?  Sometimes, yeah – of course.  Mostly, though, I am pretty content with how things have worked out.  I have a new life now, one where my family and friends fill my time, my heart, and my soul.  I am proud of the life I led as a NYPD narcotics detective. And I am just as proud of the life I lead now.  The puzzle of my life has a thousand pieces to it, and I am learning how to fit them all together.

Thanks for listening,

Andy

Andy and Patty

Andy’s Story was written by Andy W, Patty W., and Paula Schmidt for http://www.bianys.org/

 

 

 

Lisa’s Story

9 Mar beach 3

 

The Girlfriend’s Guide to TBI
Or Everything Your Doctor Won’t Tell You

When I was first told I had a traumatic brain injury (TBI) I thought “Well, duh, just look at my head!”   It was swollen and stapled together from a craniotomy – of course I knew I had a TBI!  Along with the obvious, though, I also knew that I was given a rare opportunity.  If you do the math, the chance of someone surviving 2 cerebral ruptures is only 1/10 of 1%, and  I was one of those improbable survivors.  It was like winning the “Second Chance at Life Lottery”, a prize that was both astounding and wonderful, yet carried with it a steep tax burden that wouldn’t be easy to pay.

February 1, 2005 was a miserable snowy day. Regardless, I reported to my first job that day and was driving to my second job when I passed out and apparently skidded off the road, free-falling over a 60 foot embankment. A brain aneurism in my right middle cerebral artery had burst, instantly filling my head with blood and knocking me out cold.  I don’t know how, but I miraculously avoided flipping my Jeep Cherokee or hitting every tree in my path on the way down. Someone in a blue pick-up truck saw fresh car tracks in the snow, called 911, and then left once the police arrived. I will forever be indebted to you, Mystery Person in the Blue Truck, because without you, I may not be here today.

I was taken by ambulance to Albany Medical Center and when my husband, Nate, arrived at the hospital, the doctors told him to say his goodbyes – I probably wouldn’t make it through surgery.  I survived the surgery, only to find that my ordeal was just beginning.   After weeks of grueling therapy I looked at Nate and told him “my head feels funny”.  He rushed me back to the hospital where they found a second “pseudo” aneurysm bleeding.  A shunt was surgically placed, but at my six month check up, the aneurysm was growing.  There was no choice but to operate, so, during yet another surgery – this one 23 hours long –  a bypass artery was placed to allow proper blood flow .

My railroad head

Yes, I beat the odds again and survived that third surgery, too.  But no one could prepare me for what was to follow.  My physical balance was gone and my hands wouldn’t work. I had to relearn how to relate to people and what was appropriate to say. I have a tendency, like most brain injured people, to just say whatever I am thinking at the moment. As you can imagine, this was a poor way for me to make friends or keep the ones I already had. I also noticed that I had lost my ability to multi-task in any way – just talking on my cell phone while walking through a store was a disaster – me, crashing into people and products set up in the aisle. I could no longer make a quick decision or solve a problem. Even going to get ice cream usually resulted in just picking the first flavor I saw and dealing with it later because I was too overwhelmed to make an actual decision. “Are you sure you want bubble gum ice cream, honey?” Nate would ask, well aware of what I was doing but not knowing exactly how he could help me.

It didn’t take me long to figure out that maneuvering through my new world wasn’t going to be easy. Unfortunately, I also discovered that help was hard to find.  I remember early on in recovery wondering if all the “weird” things I was experiencing were indeed “normal” after an aneurysm. Of course, all the doctors could offer me was a shrug of their shoulders and a “it is a function of the brain”. No.  Not much help at all.  One day, out of desperation,  I  found myself wandering through the isles in the library, searching for the almost non-existent book about how to recover from a brain injury when I came across a book entitled, The Girlfriends’ Guide to Pregnancy: Or Everything Your Doctor Won’t Tell You, written by Vicki Iovine. Okay, NO, I DID NOT read the book or even flip through it for that matter, I don’t want to know what it has to say, but the title caught my eye.   I had an idea.  Childbirth is another one of those things that never goes quite the way the glossy brochures in the doctor’s office say it will, so I thought , hmmm – it might make for an interesting blog post to take the same approach.

For those of you who don’t know me well, I realize there is nothing funny about how the brain deals with a TBI. Neither am I minimizing the fear and anxiety that follows. This is just my feeble attempt to cope with all I have been through and hopefully make you smile!

Okay, here it goes:      

“The Girlfriend’s Guide to TBI:  Or Everything Your Doctor Won’t Tell You”.

1. I choke on my own spit daily now (probably the lingering effects of a stroke).  If this happens to you, blame it on your TBI.

2. I get hiccups after eating or drinking. I blame this on my stroke, too, so feel free to add your own twist.

3. I can no longer “hurry”. My brain just shuts down if I have to do anything quickly!  Feel free to shut down on a regular basis.

4. I constantly unlock my house, go back inside, and then lock it again from the inside – only to find the keys are still hanging in the door.  I do this every time -  I still haven’t mastered the sequence five years later!

5. I didn’t have an appetite for years. I had to set a timer to remind me to eat or I would forget.  Chocolate, of course, can always be your exception.

6. For about a year, simply taking a shower would require a nap to follow.   It was so exhausting!

7. I used to walk through the grocery store saying the name of each item I saw. I had to do this or I wouldn’t recognize what I was looking for. For example, I would be looking for tea and walk right past it unless I was actually saying it out loud. I even once asked somebody if I was really seeing cake mix because the store had been re-organized and I was sure the aisle I just went down used to have juice in it. Can you imagine what that poor person was thinking?  They probably went to look for a butterfly net……

8. When you take a nap, you will wake up convinced it is the next day.   There will not be a person anywhere who can talk you out of this.

9. If doctors tells you that parts of your brain have died as a result of the bleed/stroke, they are probably right. Arguing with them will not change this fact.  It is OK.  Even “normal” people only use a small percentage of their fully living brain.

10. Feeling “numb” is normal. It feels like you are just watching the world go on but you are not actually a part of it. Perhaps it is sheer exhaustion and perhaps the brain can’t keep up with such a rapid world!

11. I would randomly vomit from time to time. Poor Nate (my hubby) has often been an involuntary human shield. I think I have had every organ and system checked for proper functioning. It always checks out okay, so doctors just shrug their shoulders and say “it is a function of the brain”.  Yeah, yeah.

12. Okay, Ladies, let’s just get real for a moment. While swimming offers a buoyancy effect that is helpful for those with paralyzed extremities, the thought of putting on a swimsuit in March is not a favorite thing for any women of any age. I was a pale, bag of bones who hadn’t shaved since February 1st (possibly longer). Shaving was painful as you can imagine! To make matters worse, my whole central nervous system was frazzled and  all sensory input felt like another assault.  So, feel free not to shave (unfortunately, you can’t skip the swimsuit).

13. Dialing a phone number was a nightmare and often impossible to do. I could not transfer a number from one place to another. Also, I tried to balance the neglected checkbook once and it caused a massive meltdown!!!

14. Talking too much makes me nauseous.

15. When I sleep now, I just radiate heat for some reason?

16. At first, I had to have my husband, Nate, sit down with me to help plan the next day. We would write numbers next to the event in my planner so I could figure out how to execute the activities for that day. It is 5 years later and I still need his help sometimes (but now I can usually do it by myself… I think).

17. All time and events are measured by my aneurysm rupture.  Everything is either “that was before my aneurysm” or “that was after my aneurysm”.

18. My short-term memory was terrible but it is slowly improving. I still have to write EVERYTHING down in my daily planner, though.

19. I was an emotional basket case. I cried at literally everything (even answering a phone), until I was put on a mood stabilizer.

20. I will say that the gift of Moonlight Path Body Wash and Lotion from my friend’s, The Masons, was just what I needed to feel just a little bit more human. Oh, to not smell like a hospital was, and still is, priceless!

21.  My faith has carried me through, along with the love and support of an amazing husband, family and friends. A good friend once told me, “Lisa, no matter how many time you fail, you are not a failure!  I don’t know about you, but sometimes I still need to hear that from time to time.

22. Finally, I want to share what I consider the thing that makes every pain-staking minute of recovery worthwhile.  The “silver lining”, if you will, is ALL OF THE MOMENTS OF LIFE I didn’t miss out on -  thanks to my exceptional good fortune of surviving the odds.

Thanks for listening.  Love to all of you,  Lisa

PS:  If you get a chance, check out my blog at:

walkingtalkingmiracle.blogspot.com

Words of Wisdom from Lisa’s husband, Nate

“You just have to be patient and faithful, that’s the only advice I have.”

Lisa’s story was condensed from Lisa’s blog, *Walking*Talking*Miracle

Written by Lisa W.

Paula Schmidt, Editor

You can also read Lisa’s Story on Brainline:  http://www.brainline.org/content/2012/03/the-girlfriends-guide-to-tbi-or-everything-your-doctor-wont-tell-you.html

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